International Society
of Nurses in Genetics

Dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.
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Position Statements

The Ethics and Public Policy Committee is proud to announce the new revision of the Direct-to-Consumer Genetic/Genomic Testing (DTC-GT) position statement!  

We are grateful for the scholarly and brilliant work of the revision task force members
Carolyn Farrell, Cheedy Jaja, Heather Skirton, Marie Twal and Christopher Wade.

The ISONG Position Statements have been approved by the ISONG Board of Directors as clear and thoughtful statements on important genomic healthcare issues. Thanks to all ISONG members who contributed to this excellent work.

Genetic Biobanking for Research (PDF)

Newborn Screening: The Role of the Nurse (PDF)

Informed Decision-Making: The Role of Nursing  (PDF)

Access to Genomic Healthcare: The Role of the Nurse  (PDF)

Privacy and Confidentiality of Genetic Information: The Role of the Nurse  (PDF Updated May 2018)

Genetic Counseling for Vulnerable Populations: The Role of the Nurse  (PDF)

Provision of Quality Genetic Services and Care: Building a Multidisciplinary, Collaborative Approach among Genetic Nurses and Genetic Counselors  (PDF) 

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