ISONG Educational Resources
Please visit the ISONG Webinars for more opportunities!
Genetics/Genomics Competency Center -- Offers free and fee- based courses. Peer-reviewed collections for genetic counselors, nurses, pharmacists, physician assistants, and physicians. Visit www.g-2-c-2.org.
Information for Genetic Professionals - at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.
The Genetic Counseling Cultural Competence Toolkit is an online resource portal for genetics service providers interested in enhancing their ability to provide culturally and linguistically appropriate health care services. The website, developed with a JEMF (Jane Engelberg Memorial Fellowship) grant of the National Society of Genetic Counselors, features a network of links and resources on cross cultural communication and multilingual resources, health disparities and national standards, health literacy, clinical tools, teaching tools, etc. The website also includes 9 extensive cases that have been approved for Category 1 CEUs for genetic counselors and as an interdisciplinary continuing education opportunity for nurses. Continuing education credits are also available for medical interpreters and translators; students and other interested adult learners can earn a learning certificate for completing the case series.
National Coalition for Health Professional Education in Genetics - (NCHPEG) is a national effort to promote health professional education and access to information about advances in human genetics. Sponsored by Jackson Laboratories with CEUs for health professionals.
National Genetics and Genomics Education Centre - The NHS National Genetics and Genomics Education Centre was established in 2005 and funded by the Department of Health as one of the major initiatives of the 2003 Genetics White Paper 'Our Inheritance, Our Future – Realising the potential of genetics in the NHS'. One of the main aims of the Centre was to improve the understanding of genetics among healthcare professionals and its role in modern healthcare.
Supporting education in genetics continues to be a key component of our work. However we have recently expanded this to include genomic healthcare. The Human Genomics Strategy Group 2012 report 'Building on our inheritance: Genomic technology in healthcare' confirmed the important role of the Centre in continuing to support non-genetics healthcare professionals and pre and post-registration healthcare professionals.
National Office of Public Health Genomics - This regularly updated site provides access to current information on the impact of human genetic research and the Human Genome Project on public health and disease prevention. It is also home to the web site for HuGE NeT (Human Genome Epidemiology Network) presenting information on epidemiologic aspects of human genes.
Telling stories, understanding real-life genetics is a web-based multi-media education resource that uses real-life stories from the public and professionals to promote knowledge and understanding of genetics and how it impacts on people's lives. The collection of 100 stories from individuals, patients, carers, professionals, in text and video formats are mapped to education frameworks for nurses, midwives, student doctors and primary care physicians.
Genomics Education Program is a British website for health care providers with resources that has online certificate & degree programs, as well as in-person courses https://www.genomicseducation.hee.nhs.uk/
Global Genetics and Genomics Community has genetic and genomic healthcare simulations; users can interview simulated patients, interpret family histories, identify risks, and apply guidelines to patient care. http://g-3-c.org/enCity of Hope has intensive courses for career development, cancer risk assessment, and continuing education and networking. http://bit.ly/2jsiOcW
Genomic Medicine for Health Care Professionals provides reliable, up-to-date genetics and genomics information related to patient management, curricular resources, new National Institutes of Health and NHGRI research activities, and ethical, legal and social issues.
GeneEd - Genetics Web site that links to vetted genetic materials for high school students and the general public. Visit http://geneed.nlm.nih.gov
The Genetics Home Reference - for users who would like more general information about genetics. "Help Me Understand Genetics" provides a basic explanation of how genes work and how mutations cause genetic disorders. It also includes current information about genetic counseling, genetic testing, gene therapy, and the Human Genome Project.
NHGRI - for the National Human Genome Research Institute at the National Institutes of Health. Additional resources related to genetics from the NHGRI include: Spanish Talking Glossary of Genetics. This is a very helpful glossary using an innovative combination of text, illustrations and audio commentary in an accessible, user-friendly format. It is available free on NHGRI’s web site.
Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders.
Biochemgen - a searchable list of biochemical genetic tests and the laboratories that offer each.
GeneTests - Database of biochemical genetic tests and information of laboratories offering testing
Human Genome Project Information – site for material about the history, progress, research and resources of the Human Genome Project and maintained by the Human Genome Management Information System (HGMIS) for the U.S. Department of Energy Human Genome Program. Visit https://www.genome.gov/10001772/all-about-the--human-genome-project-hgp/
Precision Medicine: Incorporation of Genetics and Genomics into Nursing Practice
A three (3) hour learning activity developed by Jan Dorman, Mandy Schmella and Sue Wesmiller is now available online. The purpose of this educational program is to inform nurses about their significant role in the national Precision Medicine Initiative (PMI), and to teach them how to collect genetic information to better assess disease recurrence risk. Activity is online and self-paced. Cost is $75, successful participants receive 3 contact hours.