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2017 ISONG World Congress 

On behalf of the 2017 International Society of Nurses in Genetics (ISONG) World Congress Planning Committee and the ISONG Board of Directors, we invite you to join us for the 2017 ISONG Congress, "Precision Nursing Through Research Education and Practice."

The 2017 ISONG CONGRESS “Personalized Nursing: Through Research, Education and Practice will provide attendees the opportunity:

  • To  describe the concept of personalized nursing, and its translation into nursing research, education and practice.
  • To understand the unique, and important role of the professional nurse in the education of patients regarding personalized medicine.
  • To recognize bioethical issues surrounding personalized nursing and the application in research, education and practice.
  • To apply the concepts gained through this conference to further integrate personalized nursing in their own clinical specialty.
This is an exciting opportunity to network with both new and old colleagues in Reston, Virginia while learning what is new in genetics and genomics!  

Sincerely,

Susan Wesmiller,  PhD, RN       Deb Tamura, MS, RN              
2017 Congress Co-Chair           2017 Congress Co-Chair                                        

Please contact Linda Mason at linda@isong.org for more information on the Congress or for sponsorship opportunities. Click here for the Sponsor Prospectus. 

Upcoming events

    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Pharmacogenetics and Your Clinical Practice
    Presented by: 
    Dennis J. Cheek, PhD, RN, FAHA

    Webinar Description
    Genomics is a central science for all advanced practice nurses due to the fact that many diseases and conditions have a genetic or genomic component. In the imminent future, all health care will increasingly include genetic and genomic information including pathways of prevention, screening, diagnostics, pharmacology, selection of treatment, and monitoring of treatment effectiveness. This webinar will examine the advances in pharmacogenomics, which is the study of genetic/genomic variation and how these variation influence drug therapy.

    Target Audience
    Personalized medicine has arrived and this webinar is designed to provide the clinical nurse with the latest information on pharmacogenomics in their clinical practice. The webinar will also provide the advanced practice additional information on additional pharmacogenomics information for prescribing and monitoring of drug therapy.

    Objectives
    1. Explain the difference between genetics and genomics.

    2. Discuss the clinical importance of pharmacogenomics in the clinical setting.

    3. Discuss the role of the healthcare provider with regard to pharmacogenomics data and patient management. 


    Presenter
    Dennis J. Cheek, RN, PhD, FAHA is currently the Abell-Hanger Professor in Gerontological Nursing at Texas Christian University - 
    Harris College of Nursing and Health Sciences with a joint appointment in the School of Nurse Anesthesia.

    He received his Bachelor of Science in Nursing from California State University, Fresno and his Masters of Science in Nursing from the University of California, San Francisco with a focus in Critical Care Nursing and Education. 

    He received his Doctor of Philosophy in Cellular & Molecular Pharmacology and Physiology from the University of Nevada, Reno and was awarded a Nevada AHA Affiliate Post - Doctoral Fellowship to continue his research. His teaching responsibilities include undergraduate pharmacology, graduate pathophysiology and pharmacology, nurse anesthesia pharmacology and cardiovascular physiology as well as one the core courses' in the Doctoral of Nursing Practice program at TCU. 

    Along with his teaching responsibilities, he is continuing his program of research in the newly renovated Nursing Research Laboratory studying the effects of age on endothelial cells. Dennis has been a member of the Council on Cardiovascular Nursing since 2000 and was inducted as a Fellow of the American Heart Association (FAHA). He has published in numerous journals including American Journal of Critical Care, American Association of Critical Care Nurses Clinical Issues, American Association of Nurse Anesthetist , American Journal of Physiology: Heart and Circulatory, Biological Research in Nursing, Circulation Research, Critical Care Nurse, Heart & Lung, Journal of Emergency Nursing, Journal of Nursing Scholarship, Proceedings of the National Academy of Sciences in the United States and The Journal of Cardiovascular Nursing.


    Continuing Educational Credits 

    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation



    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Genetic Factors in Traumatic Brain Injury Outcomes
    Presented by: Katie Edwards, RN


    Katie received her Bachelor of Science in Biology in 2007, and a Bachelor of Science in Nursing from the University of South Carolina Upstate in 2010. Her nursing experience includes neuro/trauma ICU at a level one trauma hospital as well as neurorehabilitation. She is committed to improving the quality of life for patients recovering from traumatic brain injury. Katie is pursuing a PhD in Healthcare Genetics from Clemson University in South Carolina., where she is currently focusing on the study of genetic variants important to traumatic brain injury recovery.

    Description

    This webinar will provide a State of the Science overview on the topic of genetic variation and response to traumatic brain injury. The evidence identifies several genes with gene products in multiple pathways that are active after traumatic brain injury and amenable to therapeutic development. This presentation will highlight some of the genetic and biologic factors that result in differences in outcomes after traumatic brain injury.

    Who Should Attend?

    Nurse clinicians, nurse scientists and nurse educators who have an interest in genetic contributions to response to injury and brain injury.

    Objectives

    1. The learner will be able to discuss the significance of traumatic brain injury to the US and world population.

    2. The learner will recognize genetic factors associated with mild, moderate, severe, and penetrating TBI.

    3. The learner will explain potential clinical application and future research needs related to genetic influence on outcomes from TBI.

    The cost is $25.00 for ISONG Members / $50.00 for Non-members.



    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation



    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Cardiovascular Genetics: An Overview
    Presented by: Lisa Shah, RN, MSN

    Lisa Shah is a PhD candidate at the University of Iowa with a focus on family management of inherited cardiovascular disorders. She has a bachelor's degree in biology from Iowa State University and earned her BSN from Creighton University in 2005. She earned her MSN from The University of Iowa in 2014. Prior to focusing on research, Lisa practiced at the bedside in a cardiovascular surgery progressive care unit at Mayo Clinic caring for adults and children with common and rare cardiovascular conditions. Her research interests include how people develop risk perceptions for complex diseases, how families communicate genetic risk information, and cardiovascular genetics. She attended the National Institute of Health Summer Genetics Institute in 2014 and is a recipient of an F31 Pre-Doctoral Individual Training Grant from the NIH.

    Description

    Cardiovascular Genetics: An Overview is the first in series of webinars developed to increase awareness of genetics and cardiovascular disease. This series kicks off during American Heart Month by reviewing how genetics plays a role in inherited and common cardiac diseases and presenting best practices for risk assessment through targeted family history approaches and identification of clinical red flags in the assessment so that RN providers can appropriately screen, refer, education, and manage care within their scope of practice.

    Who Should Attend?

    This webinar is useful for the practicing nurse at all levels, nursing students, researchers and policy makers who need a refresher on basic cardiovascular physiology and genetics.

    Objectives

    1. Discuss the role of genetics in various cardiovascular diseases.

    2. Describe genetic risk factors and family history red flags for major cardiovascular disorders.


    Cost 

    $25.00 for ISONG Members 
    $50.00 for Non-members

    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Noninvasive Prenatal Screening Test: A New Screening Option for High Risk Pregnant Women

    Presented by: 
    Tina Mladenka, DNP, APRN, CNP, WHNP- BC
    Christina Murphey, PhD, RNC-OB

    Tina Mladenka is a Women's Health Nurse Practitioner who currently provides reproductive health services at Southeastern Idaho Public Health in Pocatello, ID. She is a NIH/NINR Fellow of the Summer Genetics Institute 2007 and is currently serving as Co-Chair for the ISONG Perinatal Nursing SIG. Dr. Mladenka has worked in a variety of practice, academic, and teaching roles in the areas of perinatal, reproductive, and women's health and health care genomics.

    Christina Murphey is an Assistant Professor and Director of the Graduate Maternity Program at The University of Texas at Austin, School of Nursing. She is a NIH/ NINR Fellow of the Summer Genetics Institute and has is currently serving as Co-Chair for the ISONG Perinatal Nursing SIG. Dr. Murphey has worked in a variety of research, academic, and teaching roles in the areas of health care genomics and perinatal health promotion.

    Description
    Noninvasive prenatal screening test (NIPS) is a new option in prenatal testing that screens for trisomy 21 and other fetal chromosomal abnormalities. It analyzes cell-free fetal DNA from a sample of maternal blood. This webinar will provide information about noninvasive prenatal screening, including a description of the test, accuracy of the test, its advantages and limitations, indications for the test, pre- and post-test counseling, how it is different than current prenatal screening tests, ethical and legal implications of the test, and current professional recommendations for the test.

    Who Should Attend?
    Nurses, nurse practitioners, and other interdisciplinary health care providers who have minimal experience or educational preparation in genetics and are involved in prenatal care and/or want to know more information about noninvasive prenatal screening test for professional and personal reasons.

    Objectives
    1. Explain 3 key concepts regarding the noninvasive prenatal screening test (NIPS)

    2. Describe how NIPS test is different than current prenatal screening tests.

    3. Identify clients to whom NIPS test should be offered.

    4. Explain current professional recommendations for NIPS test.

    5. Describe basic ethical and legal aspects of NIPS

    Cost
    $25.00 for ISONG Members 
    $50.00 for Non-members


    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Direct to Consumer Genetic Testing - Is it Better for Patients?
    Presented by: Professor Heather Skirton

    Heather Skirton is an experienced genetic nurse and her work includes research on genetic healthcare and education in genetics for nurses.

    She is a Past President of ISONG and the current Chair of the European Board of Medical Genetics.

    Description

    Direct to consumer genetic tests have been available for purchase over the Internet for some years.

    Nurses may be approached for advice by patients considering a test.

    They may also need to discuss the results of DTC test with patients who have already undergone one and need guidance about using the results.

    In this presentation, we will discuss the relative advantages and disadvantages of using DTC tests, based on two issues, the question the patient is seeking to answer with a test, and the predictive value of the tests.

    The material in the webinar will be based on systematic reviews on the topic from the perspective of users, health professionals and bioethical and professional organisations.

    We will discuss the use of DTC testing in light of the predictive value of the actual tests undertaken. Finally, we will also present our decision tool that was developed to support health professionals and patients considering DTC testing.

    This presentation will be suitable for both specialist genetic nurses and those working in other areas of healthcare.


    Who Should Attend?

    This webinar will be useful to anyone involved in delivering genetic healthcare, including genetic nurses and genetic counsellors, as well as professionals working in allied settings such as family history clinics, oncogenetics or cardiogenetics.

    It will also be of use to practitioners in settings such as primary care, as these professionals may be asked by patients for advice on whether a DTC test would help them.

    Objectives

    1. Nurses will be familiar with the concept of DTC testing.

    2. Nurses will be able to discuss the benefits and disadvantages of using DTC tests.

    3. Nurses will be able to discuss the predictive value of DTC tests.

    4. Nurses will be more able to discuss DTC tests with patients considering buying a test.

    The cost is:
    $25.00 for ISONG Members
    $50.00 for Non
    -members

    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

    • 03 Mar 2017
    • 10 Mar 2018
    • at your convenience

    ISONG Webinar 

    Tailoring Nursing Assessment and Interventions to Provide Individualized Health Care

    Presented by: 
    Elizabeth L. Pestka, PMHCNS-BC, APNG

    Description

    This presentation will focus on individualized health care including five overall aspects utilized by the Mayo Clinic Center for Individualized Medicine including pharmacogenomics, epigenetics, microbiome, clinomics, and biomarker development. Nurses in all clinical areas need to tailor care by including genetic and genomic information in their assessments and interventions and numerous examples of how this is currently being done will be part of the session. Finally, one successful interdisciplinary quality improvement project, initiated and led by nurses, will demonstrate how the use of family history information related to substance abuse can improve care for patients with chronic pain. Clinical implications include preventive interventions for more individuals, potential considerable health care cost savings, and a greater appreciation of the value of family history information by both providers and patients. This project has potential to be generalized for use with other health conditions.

    Who Should Attend?

    This presentation is for all professionals who want to learn more about integrating genomic assessments and interventions into nursing clinical practice. Nurses working in academic positions will be able to include the real examples in classroom discussions and nurses involved in clinical practice will be able to identify ways that genomic information is applicable in providing care to their patients.


    Continuing Nursing Education Credits 

    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

    • 03 Mar 2017
    • 19 Mar 2019
    • at your convenience

    ISONG Webinar 

    Family History in Clinical Practice

    Presented by: 
    Suzanne M. Mahon, RN, DNSc AOCN, APNG
    Sue Nicholas, MSN, BSN, RNC-BC, WHNP-BC


    Description

    This webinar would be helpful to nurses who wish to better understand how to construct an accurate family pedigree, pedigree analysis, and risk assessment principles. Concepts will be explored using clinical case examples.

    Target Audience

    Nurses in any clinical setting who want to advance their knowledge in obtaining a family history and pedigree, along with risk identification and appropriate genetic referral.

    Objectives

    1. Construct an accurate three generation pedigree.

    2. Describe at least two ways in which the pedigree can be utilized to better categorize risk for developing disease.

    3. Describe how pedigree analysis guides referrals for genetic assessment.


    Presenters
    Dr. Suzanne Mahon is a Professor in the Division of Hematology/Oncology 
    and a Professor in Adult Nursing in the School of Nursing at Saint Louis  University in St. Louis, Missouri. She instituted and has run the Hereditary Cancer Program there since 1999 where she has provided genetic counseling and educational services to over 4000 families. She has over 100 publications in the area of cancer prevention and cancer genetics in peer reviewed journals. She is the recipient of the 2011 ISONG Founders Award for Education to Professionals, Patients, and the Public. Dr. Mahon is also the recipient of the Saint Louis University 2012 School of Nursing Alumni Award which recognized an outstanding alumnus of the School of Nursing who exemplifies, in daily life, the mission of Saint Louis University and has achieved outstanding success in their professional life and in their intellectual pursuits.

    Ms Nicholas has spent 35 years caring for women across the care continuum with primary focus within the high risk obstetrical arena. She is passionate about the care of childbearing families as she believes they are
    our future. Her position at Akron Children's Hospital has afforded her the opportunity to coordinate the care of high risk families and expand her genetic/genomic expertise within the Fetal Care Center. In 2013, she was part of a dyad selected to participate in the MINC project (Methods of Incorporating Nursing Competencies) which expanded her knowledge of genetics and genomics. She has since become the nursing ambassador within her organization, educating nurses on the importance of family history, risk identification and utilization of our genetic services to improve the health of the patients we serve.


    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.



    • 05 Apr 2017
    • 01 Apr 2018
    • at your convenience

    ISONG Webinar 

    Beyond the Panels: Current Practice of Cardiovascular Genomics

    Presented by: 
    Sarah Race, RN, CNS 
    Heidi Salisbury, RN, CNS 

    Description

    Beyond the Panels: Current Practice of Cardiovascular Genomics is the second in series of webinars developed to increase awareness of genetics and the heart. This webinar was developed to follow the February ISONG webinar on Cardiovascular Genetics: The Basics, both highlighting American Heart Month by providing both foundational knowledge in cardiovascular genetics as well as current practice guidelines in the use of genomic testing technologies (sequencing) and knowledge of genomic mutations to guide clinical practice and presentation of a clinical practice model exemplar for team-based practice implementation to provide best practices in family care for inherited conditions. 


    Who Should Attend?

    This webinar is useful for the practicing nurse at all levels, nursing students, researchers and policy makers who want to gain real-world understanding of the clinical utility of genome sequencing and mutation detection in cardiovascular disease, in addition to understanding best practices for team-based clinical implementation and family care for inherited conditions.  

    Continuing Nursing Education Credits 

    This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.

    Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.

    The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

    • 19 Apr 2017
    • 12:00 PM
    • 01 Apr 2020
    • 1:00 PM
    • Webinar

    New! Genetics and Implications of Metabolic Newborn Screening for Nurses Webinar

    Presenter: Sarah Viall, MSN, PPCNP-BC

    Description
    This session will briefly address the history of newborn screening, including the philosophy and technology behind the expanded newborn screen and the general logistics of its implementation nationally. The focus of the presentation will be a discussion of actions to be taken following abnormal results using lecture and case-study format with particular emphasis on the metabolic disorders more rarely diagnosed and discussed (i.e. fatty acid oxidation, organic acidurias, enzyme deficiencies). This webinar will include the basic pathophysiology of metabolic and genetic disorders, signs and symptoms to monitor prior to newborn screen results, indications indicative of false versus true positives, and resources available to assist in making clinical decisions and informing families of results.

    Who Should Attend?
    Any nurse working in Genetics or Primary Care, particularly those working in the care of newborns or infants.

    Objectives
    By the end of the webinar the attendees will be able to:

    1.  Identify at least one source of information pertinent to the newborn screening program of the state or territory in which you practice.

    2. Differentiate between the distinct newborn screening disorder categories.

    3.  Identify publicly available resources to assist in the nursing practice of triage and response to abnormal newborn screens.


    Presenter

    Sarah Viall, MSN, PPCNP-BC
    Newborn Screening and Telegenetics Program  Director
    Division of Genetics and Metabolism
    Children's National Health System
    Washington, DC USA

    Sarah Viall graduated from the Yale School of Nursing Pediatric Nurse Practitioner Program in 2012. Since that time she has worked as the Newborn Screening Follow-up Director of the Rare Disease Institute at Children's National Health System in Washington, DC. There, she specializes in the follow-up of newborns and children with metabolic disorders detected by newborn screening.

    The cost of the webinar is:

    $25.00 for ISONG Members
    $50.00 for Non-Members
    $15 for Students 

    Contact Hours

    ISONG is collaborating with the University of Pittsburgh School of Nursing to provide this learning activity.  Participants completing this activity will receive a maximum of one hour of continuing nursing education contact hours. The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 17 May 2017
    • 4:00 PM - 5:00 PM
    • Webinar

    New Webinar - Women at Increased Risk for Breast Cancer Based on Family History: Calculating Lifetime Risk and Ordering Screening MRI Based on Current U.S. Guidelines.

    Description
    Several organizations recommend healthcare providers offer annual breast MRI to women with lifetime risk for breast cancer above 20%.  In this webinar, Deborah O. Himes and Amanda Gammon will review U.S. breast cancer screening guidelines and risk assessment models. The presenters will provide step-by-step instructions for calculating lifetime risk using the Tyrer-Cuzic model. Additionally, they will present a clinical decision making model to help assess which should  be referred for additional risk assessment and/or referral for genetic counseling.

    Who Should Attend?
    This presentation is intended for primary healthcare providers including nurses, nurse practitioners, physician assistants, and physicians who care for women who may be at increased risk for breast cancer.

    Objectives

    • During this presentation attendees will learn to calculate lifetime risk for breast cancer using the
      Tyrer-Cuzick model.

    • After this presentation, attendees will be able to explain differences in risk for breast cancer among women in differing risk categories (population, familial, hereditary) and screening guidelines based on risk category (mammography and breast MRI).

    • After this presentation attendee will be able to describe three different models used for calculating lifetime risk for breast cancer.

    •  Following this presentation attendees will understand how to select patients for in-depth risk assessment and/or referral for genetic counseling related to breast cancer risk. 


    Presenters

    Deborah O. Himes, PhD, APRN-BC, ANP 
    Asssitant Proffessor
    Brigham Young University
    College of Nursing
    Provo, Utah USA


    Amanda Gammon, MS, CGC
    Assistant Director, Genetic Counseling Graduate Program
    Licensed Genetic Counselor
    Family Cancer Assessment Clinic
    Provo, Utah USA

    The cost of the webinar is:

    $25.00 for ISONG Members
    $50.00 for Non-Members
    $15.00 for Students 

    Contact Hours
    ISONG and the University of Pittsburgh School of Nursing are collaborating to provide this learning activity. Nurse participants completing the activity and the evaluation tool will receive one (1) continuing nursing education contact hour.  The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

    • 03 Nov 2017
    • 7:30 AM (EDT)
    • 05 Nov 2017
    • 12:00 PM (EST)
    • Hyatt Regency Reston Hotel, Reston Virginia USA

     2017 ISONG WORLD CONGRESS  
     
    November 3-5, 2017
     HYATT REGENCY RESTON
     1800 Presidents Street
     Reston, Virginia 20190, USA

    Please join us for the welcome reception on Thursday evening, November 2nd! 

    ISONG Members please log in before registering for the discounted member rate. 

    CONGRESS OBJECTIVES

    The 2017 ISONG CONGRESS, “Personalized Nursing: Through Research, Education and Practice," will provide attendees the opportunity:

    To  describe the concept of personalized nursing, and its translation into nursing research, education and practice.

    To understand the unique, and important role of the professional nurse in the education of patients regarding personalized medicine.

    To recognize bioethical issues surrounding personalized nursing and the application in research, education and practice.

    To apply the concepts gained through this conference to further integrate personalized nursing in their own clinical specialty.

    CONGRESS HOTEL 

    Hyatt Regency Reston
    1800 Presidents Street
    Reston, Virginia 20190 USA
    Phone: +1 703-709-1234

    The ISONG Congress group room rates are as follows:

    $179 Single/ Double plus taxes

    All room reservations must be made by October 11, 2017 to ensure that you get the discounted group room rate. It is recommended that you make your reservation as soon as possible.

    The hotel offers a complimentary shuttle to/from the Dulles Airport. 

    Check in 3PM / Check out 11AM

    Click here to make a reservation at the special room rate.

    PROGRAM and ADDITIONAL INFORMATION

    Click here for the current list of speakers and for more information about the venue. 

    The Congress brochure and additional information will be available soon! Contact Linda Mason at linda@isong.org if you have any questions or if you need any assistance.

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