Direct to Consumer Genetic Testing - Is it Better for Patients?
Presented by: Professor Heather Skirton
Heather Skirton is an experienced genetic nurse and her work includes research on genetic healthcare and education in genetics for nurses.
She is a Past President of ISONG and the current Chair of the European Board of Medical Genetics.
Direct to consumer genetic tests have been available for purchase over the Internet for some years.
Nurses may be approached for advice by patients considering a test.
They may also need to discuss the results of DTC test with patients who have already undergone one and need guidance about using the results.
In this presentation, we will discuss the relative advantages and disadvantages of using DTC tests, based on two issues, the question the patient is seeking to answer with a test, and the predictive value of the tests.
The material in the webinar will be based on systematic reviews on the topic from the perspective of users, health professionals and bioethical and professional organisations.
We will discuss the use of DTC testing in light of the predictive value of the actual tests undertaken. Finally, we will also present our decision tool that was developed to support health professionals and patients considering DTC testing.
This presentation will be suitable for both specialist genetic nurses and those working in other areas of healthcare.
Who Should Attend?
This webinar will be useful to anyone involved in delivering genetic healthcare, including genetic nurses and genetic counsellors, as well as professionals working in allied settings such as family history clinics, oncogenetics or cardiogenetics.
It will also be of use to practitioners in settings such as primary care, as these professionals may be asked by patients for advice on whether a DTC test would help them.
1. Nurses will be familiar with the concept of DTC testing.
2. Nurses will be able to discuss the benefits and disadvantages of using DTC tests.
3. Nurses will be able to discuss the predictive value of DTC tests.
4. Nurses will be more able to discuss DTC tests with patients considering buying a test.
The cost is:
$25.00 for ISONG Members
$50.00 for Non-members
This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.
Participants successfully completing this activity will be awarded one (1) continuing nursing education contact hour.
The University of Pittsburgh School of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.